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Covering Vaccines

Science, policy and politics in the minefield

Around 8 p.m. on the evening of Dec. 23, 2009, my 12-year-old son and I were puttering around the house when there was a sudden, loud banging at the front door.

“I have legal papers for Amy Wallace,” a brusque woman’s voice said from the other side of the door when I asked who was there. I was startled. The voice sounded unpleasant. It was dark out. It was the night before Christmas Eve. I didn’t feel like welcoming the voice in. Can you leave the papers outside, I asked? “Are you Amy Wallace?” barked the voice. “Uh,” I said, hesitating, my head muddy. Who was sending me legal papers?

“I’m going to take that as a yes!” the voice said, and not in a friendly way. “I saw you through the window. Consider yourself served!”

A little more than two months before, the November issue of Wired magazine had hit newsstands. The cover story was “An Epidemic of Fear: One Man’s Battle Against the Anti-vaccine Movement,” and I had written it. In part, the story was a profile of Dr. Paul Offit, the co-inventor of the rotavirus vaccine and a leading proponent of vaccines for children. But the story also painted a portrait of a passionate movement led by people who believe vaccines injure and kill children. And on Dec. 23, one of those people sued me, Dr. Offit and Conde Nast, the company that publishes Wired, for one million dollars.

We’ll get to the allegations of the suit in a second. But since I’m writing this for journalists, let me say this: getting sued for libel is just as big a bummer as you’ve always feared.

I’ve been a journalist for more than half my life. I have written for newspapers and magazines, I have been a reporter, an editor, a staff writer, an editor-at-large. Never before have I been a defendant. I am careful. I am meticulous. Above all, I work hard to be not just factual, but fair — to put bits of information in their proper context.

But here’s the simple truth: If someone wants to sue you, they can. Easily, too. And Barbara Loe Fisher, the cofounder and president of the National Vaccine Information Center in Vienna, Virginia, the largest, oldest, and most influential of the watchdog groups that oppose universal vaccination, wanted to sue me. So she did.

Challenge your assumptions

I’ve been asked to offer advice in this essay to those thinking of writing about vaccines. My basic advice is the same as I’d offer to people interested in covering public schools or Congress or the environment. Learn everything you can about the topic. (The resource guide posted on USC’s ReportingonHealth.org website is excellent in this regard). Challenge your own assumptions and be open to all points of view. Talk to lots of people and be willing to ask dumb questions. Then, take care to get every detail — big or small — right in print. And when I say right, I mean it in both the micro and macro sense. Context is everything.

But even as I ask you to bring the same rigor to every topic you choose, it must be acknowledged that writing about an emotionally charged issue like vaccines brings with it special challenges and is something to think carefully about. Like writing about abortion or animal rights, writing about vaccines inevitably raises the ire of certain readers. It is not for the timid. I’m not saying you have to be a fiery advocate. On the contrary. But you should go into the job with eyes open.

Autism’s False Prophets, Dr. Offit’s 2008 book, opened my eyes to the risks of reporting on vaccines. Before I began working on my Wired story I read it, focusing at first on his straightforward description of what being a vaccine advocate had cost him. He’d been vilified on the Internet as a profiteer, a prostitute who serviced Big Pharma, and worse. He’d been physically accosted. His life had been threatened. Once, an anonymous caller had even implied they might go after Offit’s two children.

Shooting the messenger

What I experienced in the wake of my Wired story was similar in tone (although my child was spared). Like Offit, the vast majority of the feedback I received was positive, but the negative stuff would make your hair stand on end. As I blogged at the time, “Here are some of the questions I’ve been asked: ‘Do you believe in anything?’ ‘Do you have children?’ ‘You went to Yale?’

I’ve been called stupid, greedy, a whore. (You can read reader comments here.) I’ve been called the author of “heinous tripe.” J.B. Handley, the founder of Generation Rescue, the anti-vaccine group that actress Jenny McCarthy helps promote, sent me an essay titled, “Paul Offit Rapes (intellectually) Amy Wallace and Wired Magazine.” In it, he implied that Offit had slipped me a date rape drug. Later, he sent me a revised version that omitted rape and replaced it with the image of me drinking Offit’s Kool-Aid. That one was later posted at the anti-vaccine blog Age of Autism.

On Thanksgiving of last year, as the furor seemed to be dying down a bit, the website Age of Autism — the same site that published Handley’s “Kool-Aid” screed — posted a Photo-shopped portrait of me, Dr. Offit and several others who have written or reported on the vaccine issue (and not blamed vaccines for autism or numerous other maladies) sitting around a table, about to dig in to a holiday feast. The greeting on the card said, “Happy Thanksgiving from The Hotel California.” Instead of a turkey, the main course we were about to dine on was a baby.

Still, until Dec. 23, I had this to be thankful for: no one had sued me. Then came the rapping at the door. Here is what Barbara Loe Fisher, who I’d described in my story as “the brain” of the anti-vaccine movement and as “a skilled debater who often faces down articulate, well-informed scientists on live TV,” alleged in her suit: That a two-word quotation (Dr. Offit says of Fisher, “She lies.”) constituted a false statement of fact about her that would cause people to conclude that she is not a person of honesty or integrity.  In this way, she alleged, I (along with Dr. Offit, and Conde Nast) had defamed her and caused her to appear “odious, infamous and ridiculous.”

Here was the context within which the quote she objected to was placed:

Paul Offit has a slightly nasal voice and a forceful delivery that conspire to make him sound remarkably like Hawkeye Pierce, the cantankerous doctor played by Alan Alda on the TV series M*A*S*H. As a young man, Offit was a big fan of the show (though he felt then, and does now, that Hawkeye was “much cooler than me”). Offit is quick-witted, funny, and — despite a generally mild-mannered mien — sometimes so assertive as to seem brash. “Scientists, bound only by reason, are society’s true anarchists,” he has written — and he clearly sees himself as one. “Kaflooey theories” make him crazy, especially if they catch on. Fisher, who has long been the media’s go-to interview for what some in the autism arena call “parents’ rights,” makes him particularly nuts, as in “You just want to scream.” The reason? “She lies,” he says flatly.

“Barbara Loe Fisher inflames people against me. And wrongly. I’m in this for the same reason she is. I care about kids. Does she think Merck is paying me to speak about vaccines? Is that the logic?” he asks, exasperated. (Merck is doing no such thing). But when it comes to mandating vaccinations, Offit says, Fisher is right about him: He is an adamant supporter.

On March 10, 2010, Fisher’s lawsuit was dismissed on its merits. United States District Judge Claude M. Hilton issued a Memorandum Opinion that is better reading material than anything I will type here. Basically, he concluded that Dr. Offit’s quote about Fisher was illustrative of the rough-and-tumble nature of the controversy over vaccines – and therefore worthy of mention in an article about that controversy.

So, we won. But not before thousands of hours (and countless dollars) were spent proving how fair the story was. This is the nature of the beast. And the beast doesn’t tire, it seems, of taking whacks at those who dare to describe it.

A few weeks ago, Age of Autism caught wind of the fact that my Wired article is going to be included in the next edition of the annual compilation Best American Science Writing. The site promptly published a post. “Remember Amy Wallace? I sure wish I didn’t,” the writer began, adding: “For those lucky enough not to, I apologize for ruining your day.”

The post then asserted that the inclusion of my Wired piece in the book was simply payback from the pharmaceutical industry. How, you may wonder, did they make that leap? Well, this year’s collection is being edited by Dr. Jerome Groopman, the Harvard professor, scientist and writer. And according to Age of Autism, “Drug companies Immunex and Hoffman-La Roche have funded Groopman’s research. He has authored a chapter on viral infection in a symposia published by Novartis, and has served on the speaker’s bureau of Ortho Biotech, a subsidiary of Johnson and Johnson...”

They keep going in their list of supposed conflicts, but you get the idea. The point is this: When you enter the vaccine-thicket, one thing you can rely upon is that experts will be vilified. To the extent you attempt, with thorough reporting, independent research and cogent analysis, to become something of an expert yourself, you likely will be labeled a villain, too.

Do I regret my trip into the thicket? On the contrary. My Wired piece was a chance to contribute in a meaningful way to a discussion that must be had. The other day, a friend told me she’d heard about a mumps outbreak at a Los Angeles high school. Then, the morning that I finished writing this, the Los Angeles Times had a story about health officials’ worries that an East Coast mumps outbreak was spreading to L.A.

Need I say any more?

Story Ideas

Here are some ideas to jump-start your reporting on vaccines:

1. The state of California has just declared whooping cough an epidemic, with 910 cases that have left five babies dead — a case load that is 400 percent higher this year than last. The state is on track to break a 50-year record. This bleak fact (which is true in an alarming number of other states as well) could be the jumping off point for a whole series of articles, from the history of the disease to how to spot pertussis in your children to explanatory pieces about herd immunity and why it's necessary to protect individual health by behaving responsibly as a community.

2. Canvass the research universities in your area for scientists who were interested in doing autism-related or vaccine-related research, but backed off because of the surrounding furor. (Paul Offit writes about this phenomenon in his book Autism's False Prophets.)

3. A recent study showed that more children suffered still-rare fever-related seizures when they received a combination vaccine for measles, mumps, rubella and chicken pox, rather than separating the vaccine into two doses. Find a pediatrician in your area who can talk anecdotally about this occurrence in his/her practice. It’s the perfect way in to a story about the growing movement to space vaccines out instead of delivering them all at once.

4. Track down a Patient Zero in your community who was the start of an outbreak of a vaccine-preventable disease. This a very difficult assignment, given patient confidentiality, but potentially riveting and important.

5. The whole issue of research grants creating conflicts or the appearance of conflicts for scientists is a fascinating one. Here's a good primer on the issues.

Amy Wallace is a Los Angeles-based writer whose work has appeared in The New Yorker, Vanity Fair, GQ, Esquire, Wired, Elle, More, Men’s Journal, the New York Times Magazine, The Nation and Conde Nast Portfolio, the business magazine where she was on staff as a senior writer from 2006 to 2009. Previously, she spent 14 years at the Los Angeles Times, first as a reporter and later as a Deputy Business Editor over entertainment and technology coverage. Her 2009 Wired magazine piece on vaccine panic, "An Epidemic of Fear: How Panicked Parents Skipping Shots Endangers Us All," will soon be published in The Best American Science Writing 2010.


August 30, 2010

COMMENTS | login or register to post comments

Yikes....too bad Mr Dresden...I hope you don't find out the hard way. Is their not just as many professional Doctors now claiming logically that certain vaccines from questionable pharmaceutical companines are one of the major causes of autism  and a host of other diseases?...Get your auto immune system working for you again like the old days... The day of reckoning is at hand.                                                               Its your own fault Amy... you shoud research the test period and animals used before they ok'd these vaccines for human consumption to see the real truth as to whats going on...

Hey Amy. If you don't want to get sued then don't include unsubstantiated claims that "she lies" and not give the target of those claims the opportunity to respond.

For someone who purports to have so much experience as a journalist, you seem to have become a little full of yourself.

Having worked as a journalist, I've never written a story with unsubstantiated allegations like calling someone a liar. 

I have to wonder if you contacted Barbara Loe Fisher for the article. I am sure she would have commented.

It is a journalist's job to get the absolute facts before defaming someone who is trying to give parents vital information about vaccines. Since there are so many liars in the drug industry I think this is very important that both sides of the issue are portrayed in an honest fact supporting way. We are confused enough about vaccines and the fact that they are being constantly asvertised is nothing more than legal drug pushing..we just want the absolute facts..we'll make up our own minds!

From the article:    "4. Track down a Patient Zero in your community who was the start of an outbreak of a vaccine-preventable disease. This a very difficult assignment, given patient confidentiality, but potentially riveting and important."      

Could you please elaborate?  In what way would this be "potentially riveting and important."  And are you implying that, since ... "This a very difficult assignment, given patient confidentiality", we attempt to do this somehow through medical records?



Ms. Wallace was sued for libel because she intentionally defamed Barbara Loe Fisher without evidence - apparently doing so made for an article that was aligned with her personal beliefs (and somewhat yellow journalism). She 'won' because Judge Hilton, a right-wing Reagan era appointee to the federal court, granted a motion to dismiss - ensuring that the case wouldn't be taken to trial. That is not a win. That is what happens to the justice system when money power is on one side of the scale. That is connections. And speaking of money, Ms. Wallace, I'll bet my bottom dollar that you didn't have to swallow one cent of those court costs...with deep-pocketed friends like yours.   

WHo CARES about anyone's "deep pockets"? OOOO those DEEP POCKETED FRIENDS. As soon as the trash stop "suing" everybody that looks at them the wrong way, the better off we will all be. 

Autism Dad:   JB Handley tried to sue Paul Offit over a trivial error in his book.  JB Handley also threatened legal action against a blogger who was critical of him.

 

I have seen the revised copy of Dr. Offit's book (it is the one part that you cannot see on Amazon's search function using the word "Handley"... I own the original edition).  The paragraph in question has been revised, but it makes Handley's Rescue Angels look even worse.  The thing with the change is that there is documentation to back it up (indeed, I have saved some of those blog posts to my computer acquired through Google cache after Handley forced that blogger off the 'net).

Barbara Feder Ostrov

Barbara Loe Fisher has responded to Amy Wallace's essay on her blog, Vaccine Awakening:  http://bit.ly/bQK2jM

Barbara Feder Ostrov, deputy editor, ReportingonHealth.org

I am both concerned about vaccine safety and completely agnostic about whether vaccines contributed to our son's autism. I know a lot of parents of disabled kids who are like me in both those ways. There is no proof that the current CDC schedule hurts anyone and no proof that the current CDC schedule is safe for everyone. Under those circumstance, I am mystified by all the hostility. And I don't mean the hostility of the people who threaten folks: They are just kooks and not representative of anything except the land of kookiness. I mean the hostility of the non-kooks in the debate.  Why is there even a debate? It would seem eminently sensible to just continue to encourage and fund well designed research in the related fields to answer what questions remain. We do continuing research with all other health fields -- quietly, and without drama. Why not this field?

if the case was dismissed on its merits, could you get your legal expenses reimbursed by the lady that sued you?

I'll bet that not a cent of those legal costs came out of Ms. Wallace's pocket. After all, her friend's pockets are very deep.

SO? Who cares who had to shell out the money to defend herself over this lunacy? What is that point of that comment?

That some people don't understand that vaccinations, like all science, is not 100% guaranteed to work every time and thus must be wrong/bad 100% of the time makes me almost loose hope in the human being.

There is nothing wrong with a parent asking questions and questioning everything that has to do with its child's health. But there comes a point where you must make a decision if you are going to believe the M.D, with years of experience and study behind him, or a person that is a self made expert on the issue.

This article and the one in Wired are both commendable and frankly needed. After reading them both I started looking for video clips of  Barbara "debating" with doctors on the merits of vaccinations and found a couple where she blames them for high number of  learning disorders, diabetes and asthma in American children.

Really? Couldn't be something closer to home like bad health, no exercise and even worse eating habits?

When, and if, there will be a scientific discovery, reviewed, tested and duplicated by the scientific community, that proves that vaccinations are the cause of these diseases then I will, as a scientist at heart, accept it as truth. Such is the nature of science and those who call them selves scientists. Until then I will accept vaccinations for me and my own.

Great post! Keep up the good work!

 

I remember reading that article in Wired. It was a damn good job, and don't let any idiotic fearmongers get in your way!

The threat of being sued hangs even more ominously for a freelancer without an organization to back the journalist up. Thanks for sharing this important story, Amy, and for stirring such a useful and interesting thread of discussion.

AutismNewsBeat

The anti-vaccine crowd ejects people from their conferences if not deemed 100% on board with the anti-vax agenda. In 2008 I received press credentials for the AutismOne conference in Chicago, and I was ejected on day three when they objected to a question I repectfully put to Hannah Poling's parents. In 2009 AutismOne ejected Trine Tsouderos, the Chicago Tribune reporter who, along with Amy, was later depicted as a cannibal on the Age of Autism site. Last May, Teri Arranga (AutOne's head Warrior Mom / enforcer of ideological purity) ejected a Chicago filmmaker and a public health educator with the California Department of Public Health. Both individuals had paid the entry fee for the event.

I am so outraged by this, both as a journalist and as a reasonable human being.

One very important point to remember is that the anti-vaccination collective's purpose in these complaints, suits, etc. is to silence the opposition. The choice of the timing of service on Amy was clearly meant to ruin her Christmas holiday, and leave a lasting emotional scar. It is to her creidt that she is a writing this excellent article, and, I wish that those others who have been attacked would report the attacks as clearly as Amy has.
These people are afraid of free speech. The Free Market Place of Ideas terrifies them.

I have blogged about vaccinations and one of the extremists who attack them. Please read and comment:

http://circleh.wordpress.com/2010/08/28/the-health-ranger-attacks-vaccines/

You are giving the ghoul too much coverage that he does not deserve. I realize that you were trying to appear "balanced", but there are those of us who no longer think that balance is rquired by journalists on this topic or any topic as well settled as the Earth is Round.

Orac at Respectful Insolence has him pegged four square. On multiple counts, mikey Adams is a ghoul.

Great article, scary story. Here's a link to the Penn and Teller clip about vaccines http://www.youtube.com/watch?v=RfdZTZQvuCo&feature=player_embedded

As the mother of a child on gthe autism spectrum, I can't imagine blaming the vaccines for my daughter's condition.  It doesn't even begin to make sense.  As an attorney, I would agree that if someone wants to sue you, they can.  That is the basis for the rule of law in a democratic society:  the right to have your dispute heard by the courts and resolved there.  Unfortunately, that doesn't account for the cost of litigation when the "dispute" is simply a vendetta.  In such a case, the courts in most states can award attorneys fees to the victor, but the practice is not as common as it, perhaps, ought to be. I am grateful that the dispute was resolved in your favor and that our legal system did not give further credibility to these wingnuts, because as a mother and a person I fear living in a society in which the effectiveness of vaccines has been undermined by a lack of science education and a few desperate parents who can't accept that the world is complicated and often unfair.

I think that a big problem is that the "anti science" crowd get away with libel themselves. Because they attack individuals with limited resources, they get away with saying all sorts of untrue things.

What we all need is someone with deep pockets to systematically go after the libelous hate these people post.

Great story. I so admire your strength.

Excellent, excellent post. Preparing a writer for his/her experience with a powder keg issue such as this can help their work hold up under the inevitable scrutiny. Namely, a "B+" level of preparation isn't good enough when The Horde comes for you. Conversely, a rock-solid piece (technically and legally) that holds up under fire comes off all the more credible.

As a biomedical scientist myself, I take minor issue with your #3 suggestion:

Find a pediatrician in your area who can talk anecdotally about this occurrence in his/her practice. It’s the perfect way in to a story about the growing movement to space vaccines out instead of delivering them all at once.

While I know the "personal connection" or anecdote is important to bring readers into a story, in the typical mind it becomes the story. While us weirdo data-driven science types dismiss it, the public at large will tend to cling to whatever that intro/conclusion story is on an emotional level.

While it makes great writing when you're talking about art or war heros or the like, it's a treacherous technique when discussing an issue where hard science is up against folk knowledge.

Dear Tim O,

First of all, thank you for your kind words and for repeating the key idea: get your facts straight and you have nothing to fear (but insults, which -- let's face it -- don't really matter). As for your "minor issue" with Story Idea #3, I agree with you (and I think Ken Reibel makes this point too in this discussion) that anecdotes do not prove anything and must be handled with care (the old correlation-is-not-causation idea). But anecdotes -- personal stories about real people -- are the lens through which most people understand the world. Journalists who write about science need to use them, too -- not avoid them entirely because no data points can be derived therein. I guess what I'd say is: pick your anecdotes wisely, informing your choices with hard data. My point, really, is if you steer clear of anecdotes entirely -- ceding them to those who doubt vaccines' safety -- you rob yourself of an important vehicle for getting to the broader truth.

...if you steer clear of anecdotes entirely – ceding them to those who doubt vaccines' safety – you rob yourself of an important vehicle for getting to the broader truth.

Very true. Also, in the hands of a less knowlegable writer, anecdotes from anti-vaccine activists can create the mistaken impression that the story is about parents versus scientists. In truth, there are plenty of parents of autistic children who would rather chew broken glass than take medical advice from Jenny McCarthy or Dierdre Imus. I am the parent of a 15 year old boy with autistic disorder, and I do not blame vaccines or anything else for the disorder.

Anecdotes are worth noting, from both sides, but the larger issue is that human beings are not very good at separating correlation from causation, and every health story should allude to that truth. 

 

A powerful lesson in science journalism. Thanks for sharing this.

 

What did Fisher say when you told her about the "She lies" quote so she could answer it? Did you have specific examples of the lies she's told when you spoke to her about the claim and how did she respond?

Here are four examples of Fisher not telling the truth:

Fisher and other vaccine rejectionists state that Offit influenced the CDC to vote for his rotovirus vaccine, thus voting himself rich. But the timeline is very clear – Offit had been off of the Advisory Committee on Immunization Practices for several years at the time of the vote. The group’s by-laws wouldn’t have allowed Offt to participate even if he was a voting member of the committee.

Fisher once wrote a blog post titled “Doctors Want to Kill Disabled Babies.”

About Gardasil, Fisher wrote “It is a vaccine that, by the summer of 2009, already caused more than 15,000 thousand reports of vaccine reactions, including more than 3,000 injuries and 48 deaths.” This is not true: there are no known deaths caused by Gardasil. Those deaths occurred after a Gardasil shot – sometimes up to six months later. Some 25 million doses of Gardasil have been administered since the summer of 2006, and the mortality rate for those who received the shots is statistically similar to those who never received the shot. If Fisher doesn’t know that, or doesn’t care, then she simply has no business pretending to be dishing out “vaccine information” to the public.

Fisher’s website charges that the DTP vaccine causes Sudden Infant Death Syndrome, when research actually shows the pertussis vaccine prevents SIDS.

Regarding "Too often, journalists who are moving fast and worried about their facts employ the on-the-one-hand, on-the-other-hand maneuver, thinking that it covers them. Instead, it makes the two "sides" of an issue appear to have equal merit." You may find my musings on the lack of quality reporting interesting, see: http://contusio-cordis.blogspot.com/2010/07/journalism-if-only.html

Hey Amy.  I gotta say, it's awesome to read something like this.  I'm very glad to see there's a lot of journalists out there who pride themselves on the integrity you hold yourself to, and present all of the facts rather than just enough facts to get views and make people interested.  This article makes me wish I were a journalist myself so that I could write up something on the whooping cough outbreak.. but instead I'm limited to fighting this battle in Anti-Vaccine forums, trying to present sound research to people who believe I'm trying to make them hurt their children.  By the way, I'm sure you've learned this before but it seems worth mentioning.  You're doing the right thing, regardless of what side you're on.  Educating people about issues is the single most important thing our society can do to improve itself.

Another important point: the groups that attacked you do not represent the autism community.  I can only speak as a parent, but groups like Generation Rescue and the Age of Autism blog do not represent many of us parents.  I think one can find that the autistic adults who have been vocal have also distanced themselves from those groups.

This lawsuit and others show a pattern which I believe indicates an effort to shut up the opposition.  JB Handley tried to sue Paul Offit over a trivial error in his book.  JB Handley also threatened legal action against a blogger who was critical of him.

Many people have had their lives threatened, not just Paul Offit.  Researchers and others have had threats considered to be credible by law enforcement, and others have had threats which were just as real but were better disguised.  The Age of Autism blog is certainly responsible for a share in creating this atmosphere.

Isn't the real issue in the vaccine debate how the medical profession can have behaved and communicated in such a way that the public now has this little trust in them? So little trust that they put their children at risk to avoid accepting their advice at face value?

Anonymous,

Medical malpractice and defective drug lawsuits make the news. Some patients win big which attracts more people to sue. In lawsuits, the plaintiffs push mistakes and simple accidents into acts of malice. Even if the doctors win, we begin to no longer trust the people that went to college for 12 years to become doctors.

It doesn't help that human bodies are complex and we are all different (unless you have an identical twin and even then there are still small differences). Medicines and other treatments don't always work the same from person to person. We easily conflate incidents where we are exceptional then the doctor misdiagnosed or the drug didn't work with the doctor being stricken with a basic lack of knowledge.

So unease and uncertainty with doctors fester into distrust and hostility.

It's not so much a matter of the medical community's behavior as it is an egregious lack of science/medical education in this country.  Never mind the total LACK of science education in primary/high school, a huge number of university graduates have NO IDEA what science is/how it works.  Anatomy, physiology, pathophysiology, microbiology and even some pharmacology should be studied in a comprehensive way starting in HIGH SCHOOL.  Instead, we have gym teachers giving lectures promoting abstinence.  I blame this on our consumer culture that encourages us to choose truth in much the same way we choose a brand of toothpaste: habit, hand-me-down beliefs, and persuasive advertising.  How can we expect critical thinking from a culture that places no value/invests nothing in education as the development of the thinking process?    

Another story idea:  Many mainstream autism advocacy groups have been co-opted by parents who blame vaccines for autism. Even Autism Speaks, the largest such group in the country, accommodates anti-vaccine views because to do otherwise would alienate rank and file members. So while scientists have closed the door on the causation hypothesis, many state and national groups are keeping the open to appease the parents who hold the bake sales and autism walks that keep the charities viable.

Barbara Feder Ostrov

Hi, folks, just a reminder that all comments are moderated and must meet our community code before they are published. If you're wondering why your comment doesn't appear here, it's not being "censored" - it just doesn't meet our community code. Please reframe your comment to avoid personal attacks and inappropriate language and we'll do our best to publish all viewpoints. Any questions? Email me at editor@reportingonhealth.org.

Thanks,

Barbara Feder Ostrov
Deputy Editor, ReportingonHealth.org

Woah... sad to hear that Amy! How did everything turn out? You ARE an amazing journalist, and your careful research is obvious. So mean!

Amy, thank you for the wired article (one of the best articles I read last year).  Thank you also for sharing your thoughts on writing this difficult article.

You are a great journalist, keep up the good work!

Sorry for the lawsuit, Ms. Wallace.
In our Country, Italy, the validity of vaccines is also controversial but - alas - it seems we have worse problems to face rather than sueing people debating about it. The US Are becoming too litigious a Country and they risk to implode under their judiciary system whereas others stand united at least against micro-organisms.

Thanks, Amy. The piece in wired was really eye opening for my wife and I. We were on the 'do not vaccinate' bandwagon until really delving into the research and finding out the facts. Your article helped with that and I've shared it with a lot of people.

 

Allan

Thanks Amy,

Has the experience changed how you approach future articles?  It seems unfair that you're potentially forced to write more cautiously than before, simply because someone has an overactive sense of legal entitlement.

That said, if someone asks you to write about scientology, maybe take a pass.

Thanks, AF. I am careful about accuracy now, but I always have been. I don't think I have become more cautious in my choice of subject matter. My goal in writing this essay was not to scare other journalists off, but to make sure they knew -- and were prepared for -- what they are getting into when they choose to write about vaccines. It was a privilege to be able to contribute to the conversation. If anything, this experience has made me even more eager to do that more.

As a secular swede I´m so sorry for You and what You have to endure. This whole story of the Anti-Vaccine movement and their nutty ideas and criminal actions against science do convince me that some americans are very ill educated. They don´t want to know but rather believe. But belief doesn´t help humanity, never has! You have my sincerest sympathy.

Congratulations on your Wired story. I loved it. I´m sorry to hear you got sued over it. False accusations however easy disprovable always cause enormous self doubt, where pride over work well done should have been. Also thank you for giving this guidance to other journalists. Your advice equally applies to other contentious subjects. And lastly thank you for telling us about the suit against you as it gives an even better view of some in the anti vaccine movement. They are not interested in the debate just in their dogma

PalMD

Thanks, Amy. This is a terrific piece, and I appreciate the generosity in sharing your struggle and your ideas for other writers.

Another tip I might add is watch Penn and Teller's show Bullsh*t they have an episode about vaccines. 

"Zeal is a bad mark for a cause. Nobody has any zeal about arithmetic. It is not the vaccinationists but the antivaccinationists who generate zeal. People are zealous for a cause when they are not quite positive that it is true."

- Bertrand Russell

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How to Report on Health Care Quality

Media coverage of health care quality often hinges on a doctor's personality, rather than measured quality outcomes. Here's a quick primer for journalists looking to do better reporting. more »
posted by Darshak Sanghavi | Fri, 03/19/10 10:00am

Slap: Pressure From Politically-Connected Stem Cell Firm Celltex Leads To Slate Retraction

Why did Slate retract a well-researched piece by bioethicist Carl Elliott on stem cell firm Celltex after a demand by the controversial company's CEO? more »
By William Heisel | Thu, 03/01/12 10:19am | 1 comments

The Latest From Our Community

What If Mental Illness is a Universal Experience? A Path Away from Stigma to Timely Treatment and Prevention

An opinion piece, borne of personal experience and a decade of mental health reporting, arguing in favor of many proposed changes to the DSM-5 that would allow early intervention for common mental disorders. more »
posted by Victoria Costello | Sat, 03/03/12 11:23am | 1 comments

Changes to the DSM could classify millions of seniors as mentally ill

Friday's Daily Briefing reading features great reporting on senior and mental health. more »
posted by Angilee Shah | Fri, 03/02/12 05:00pm

Health Media Jobs and Opportunities: Funding for your Mental Health Project

Reporters interested in exploring topics in mental health or illness stereotypes should check out The Carter Center's latest fellowship. Also listed are opportunities at Everyday Health and WebMD. more »
posted by Kristen Natividad | Fri, 03/02/12 11:19am

Announcement

Attention California Journalists! We're excited to announce a new reporting grant of $2,000-$5,000 to look into children's health. Successful applicants will also attend the National Health Journalism Fellowship. Click here for details.

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