Useful Resources

Long-Term Care: Multiple Concerns

October 2, 2008

About 70 percent of the elderly will require some type of long-term care services during their lifetimes, and more than 40 percent will need nursing home care. At any given time, about 1.5 million people live in one of the nation's 15,000 nursing homes. Nursing homes are heavily regulated by the federal and state governments, which pay for about two-thirds of all residents through the Medicaid and, to a lesser extent, Medicare programs (pricetag: $75 billion a year.) Assisted living, however, is governed by different rules in each state and is generally paid for with private dollars. In the future, financing care for Baby Boomers will be a challenge, since most people don’t buy long-term care insurance. For-profit corporations own about two-thirds of all nursing homes and report a higher average number of licensing deficiencies than homes owned by nonprofit organizations.

Understanding Long-Term Care
Federal Guide to the Entire Spectrum of Long-Term Care

This guide is aimed at consumers, but serves as a good primer on the types of care available.

0
view resource
Fact Sheet on Assisted Living

Federal guide aimed at consumers.

0
view resource
The Little Hoover Report on Long-Term Care

A California independent state oversight committee's report provides good background on long-term care in California and the progress that's been made. It focuses largely on residential care facilities for the elderly because that is the major growth area in long-term care.

0
view resource
Statistics, Trends and Research
Nursing Homes

Latest federal data, but usually a bit dated.

0
view resource
Long-Term Care Facilities

Beds, costs and use, pulled together by national association of nonprofit providers.

0
view resource
Detailed Use and Costs Statistics

Prepared by the largest trade group of nursing homes and assisted living facilities.

0
view resource
Report Cards

Medicare’s assessment of each nursing home, including scores on quality measures and findings from annual state inspections; searchable by name and location. More detailed results of inspections are available by request from Medicare or state health agencies.

0
view resource
Best and Worst

This site highlights good and bad nursing homes for each state, based on federal data. The site was created by a doctor concerned about poor quality.

0
view resource
Ratings

For-profit company rates and tracks nursing homes. Charges a fee for reports. Some of this information is available for free from other sources, such as Medicare.

0
view resource
Long-tem Care Facts and Figures

The California Health Care Foundation provides an overview of the long-term care landscape in California

0
view resource
The Genworth Financial 2008 Cost of Care Survey

List of average prices of levels of care, including nursing, assisted living and in-home help for all 50 states.

0
view resource
Public Policy
National Academy for State Health Policy

The section on long-term care and chronic care focuses on cost, quality and the need for change – all at the state level.

0
view resource
AARP Public Policy Institute

The section on long-term care and chronic care focuses on cost, quality and the need for change – all at the state level.

0
view resource
National Citizens’ Coalition for Nursing Home Reform

Staffing, neglect, fire safety and quality improvement are among these advocates’ top priorities.

0
view resource
Assisted Living Federation of America

Links to federal and state assisted-living policy issues.

0
view resource
Center for Excellence in Assisted Living

This coalition of 11 professional associations and nonprofits issues regular reports on key issues.

0
view resource
California Health Care Foundation

The CHCF offers two reports from 2002 on residential care facilities for the elderly that are still relevant and helpful.

0
view resource
Advocacy
American Health Care Association and National Center for Assisted Living

Federation of state organizations representing nursing home and assisted living providers, both for-profit and nonprofit; the largest trade organization.

0
view resource
National Citizens’ Coalition for Nursing Home Reform

Full of resources for reporters and consumers, including links to ombudsmen in each state, recent studies and policy issues.

0
view resource
American Association of Homes and Services for the Aging

Trade group for nonprofit nursing homes, assisted living residences, adult day services, home health and community programs.

0
view resource
Assisted Living Federation of America

The professional association of assisted living facilities offers a consumer checklist for evaluating facilities.

0
view resource
California Advocates for Nursing Home Reform

This nonprofit provides information on California long-term-care facilities of all kinds, as well as policy issues and legal guidance; fact sheets on how to choose and evaluate a facility.

0
view resource
A Perfect Cause

Grass-roots campaign against abuse and neglect in long-term-care facilities focuses on employees who were sex offenders or have criminal records.

0
view resource
Eden Alternative

The granddaddy of reform initiatives, aimed at making the nursing home experience less institutional; adopted by hundreds of homes.

0
view resource
Pioneer Network

A coalition of providers and family members working to "reinvent" nursing homes.

0
view resource
Green House Project

Movement, aided by the Robert Wood Johnson Foundation, to establish small, home-like nursing facilities scattered in communities.

0
view resource
Culture Change

Alliance for Health Reform policy brief with overview, sources and weblinks.

0
view resource
Guidance for Consumers
National Senior Citizens Law Center

Focus on the elderly poor; publishes “20 Common Nursing Home Problems and How to Resolve Them.”

0
view resource
Consumer Consortium on Assisted Living

Consumer-based organization; useful FAQs.

0
view resource
Assisted Living Consumer Alliance

Association of advocacy groups, elder law attorneys and others promoting choice and safety; links to state information; formed in 2007.

0
view resource
Blogs
A Volunteer’s View

Frances Shani Parker, who volunteered in nursing homes, offers information interspersed with plugs for her book.

0
view resource
From the Management

Matthew G. Maupin, an Illinois nursing home administrator, on issues large and small.

0
view resource

Featured Experts


Contact Us  |   About Us  |   USC Annenberg  |   Our Funder  |   Advisory Board  |   FAQ  |   Feedback  |   Privacy Policy  |   Terms of Use
A project supported by The California Endowment