Useful Resources

Understanding Alzheimer's Disease

October 2, 2008

With as many as 5 million Americans suffering from this mind-robbing illness, and their numbers soaring as the population ages, scientists are working feverishly on strategies for prevention and treatment. But more than 100 years after the disease was discovered, scientists still aren't sure what causes it. The only approved treatments barely dull the symptoms, and there is no cure. Yet, numerous new approaches that have “cured” Alzheimer’s in mice are now being tested in people, with funding from the government and drug companies.

Understanding the Disease
The National Institute of Health Portal Site to Alzheimer’s

An overview of Alzheimer’s and links to information on symptoms, diagnosis, treatments and research from the U.S. government health research agency.

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Alzheimer’s Association

National nonprofit organization, with branches in many states, that advocates for funding and research, and promotes consumer education.

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Alzheimer’s Disease Education and Referral (ADEAR) Center

National Institute on Aging provides easily-accessible information on diagnosis, treatment, caregiving, education and research.

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Research on Causes and Treatments
What’s New

The nonprofit Alzheimer’s Research Forum summarizes the latest scientific findings and hosts discussion forums on various theories and developments.

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Treatments Being Tested

Alzheimer’s Association maintains a searchable database of clinical trials.

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Academic Research Centers

Contact info for government-funded research sites in the states.

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Genetic Causes

Cure Alzheimer’s Foundation is currently focused on identifying every genetic link to Alzheimer’s.

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Public Policy and Advocacy
Alzheimer’s Association

A national nonprofit’s take on federal issues.

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Alzheimer’s Study Group

Co-chaired by former U.S. House Speaker Newt Gingrich and former U.S. Sen. Bob Kerrey, the group is formulating a national strategic plan to accelerate progress to prevent and treat Alzheimer’s.

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Guidance for Consumers
Overview Fact Sheet

Consumer-friendly, U.S. government-vetted summary.

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Approved Treatments

Details on the handful of drugs considered mildly effective for easing Alzheimer’s symptoms.

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Detailed Resource Guide

The Fisher Center for Alzheimer’s Research Foundation, a non-profit organization, conducts research and educates the public.

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Statistics, Trends and Research
Alzheimer’s Association Annual Update

Facts and figures on incidence, costs, projections and more.

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Blogs
Reaching Out

Mayo Clinic health education outreach coordinator, Angela Lunde, blogs on family issues.

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Supporting Caregivers

Writer Mary Emma Allen and registered nurse Liz Lewis blog on all aspects of Alzheimer’s for b5media, a company that runs hundreds of blogs.

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Personal Issues

Blog by Kathy and Nancy Hatfield, two sisters whose father has Alzheimer’s. Focuses on caregiving issues.

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