Search form

Sections

Videos: The Faces and Voices of Valley Fever

Fellowship Story Showcase

Videos: The Faces and Voices of Valley Fever

Beginning this weekend, we explore the human cost of this disease by asking those who are suffering to share their stories.

Patients Tell Their Stories
Friday, September 14, 2012

The number of valley fever cases has soared so high in recent years that health experts are calling it “The Second Epidemic.” The Reporting on Health Collaborative is exploring the rise of cases, the tricky science of studying the disease, the high costs to patients and taxpayers, the lack of private interest in funding treatments and vaccines, and the long history of inaction by government agencies.

Beginning this weekend, we also explore the human cost of this disease, which never leaves the body once it takes root. And that can best be told by sharing the stories of the everyday lives of those living with valley fever. To see and hear from survivors and people who lost loved ones to the disease, visit our Valley Fever Project playlist on YouTube.

 http://bit.ly/PgLfmQ

About This Series

This project results from a new venture – the Reporting On Health collaborative – which involves the Bakersfield Californian, the Merced Sun-Star, Radio Bilingüe in Fresno, The Record in Stockton, Valley Public Radio in Fresno and Bakersfield, Vida en el Valle in Fresno, the Voice of OC in Santa Ana and ReportingonHealth.org. The collaborative is an initiative of The California Endowment Health Journalism Fellowships at the University of Southern California’s Annenberg School for Communication and Journalism.

RELATED STORIES THIS WEEK

Public pushes for new thinking in valley fever research

Advocates of valley fever research have complained that the disease does not affect enough people to garner attention and funding; local doctors often misdiagnosed it; most data about the disease dates back decades; and the public has little knowledge of the disease and its impact.

Valley Fever Research Day Aims To Connect With Community

Community members are invited to attend Valley Fever Research Day Saturday at the UCSF Fresno Center for Medical Education and Research. The event is an opportunity for researchers to connect with community members who have been impacted by the fungal disease.

Federal, local officials hopeful for 'new era' in valley fever

Many questions about valley fever remained unanswered Tuesday as public health officials, physicians and politicians finished a two-day symposium on the disease, but many were hopeful that the summit will be a turning point.

Agencies to Launch Randomized Controlled Trial for Valley Fever

Directors of the National Institutes of Health and U.S. Centers for Disease Control and Prevention tell a packed valley fever symposium they are "serious" about finding a better treatment for the disease.

Just One Breath: Valley fever’s human and financial costs detailed in new study

The rate of people being hospitalized for valley fever has doubled in California over the past decade. Not only are more people being diagnosed with the disease but the cases are serious enough that more people are ending up in the hospital.

Valley Fever Symposium

On Monday, valley fever and the California area hit hardest by it will receive unprecedented attention in a two-day symposium led by U.S. Rep. Kevin McCarthy, R-Bakersfield. Rarely do the leaders of CDC and the NIH - two of the most powerful health institutions in the world - join the stage.

Just One Breath: Valley Fever Deserves More Ink in Scientific Journals

Valley fever hasn’t generated significant research funding. What will help move the needle? A sustained effort by public health advocates, clinicians and patients and their families and continued attention from media outlets.

Just One Breath: Valley fever movement could learn from health success stories

Strong patient advocacy raised the profile of breast cancer and HIV/AIDS. What lessons can those involved in the fight against valley fever learn from other, more high profile diseases?